Cystic
Fibrosis is the most common fatal genetic disease
affecting Canadian children & young adults. There is NO CURE. It primarily
affects the lungs & digestive system. The common cold can hospitalize a
person with CF, the flu can become life-threatening. Each day contains
breathing treatments, sanitizing like crazy & doing whatever they can to
avoid getting sick. In the lungs, a build-up of thick mucus causes increasingly
severe respiratory problems. Large quantities of digestive enzymes (avg 20
pills a day) must be consumed with every meal & snack just to absorb
nutrients. CF is progressive, so it gets worse every year. They get sicker
& sicker with time. Virtually all CF related deaths are due to lung
disease.
Meet Sophia &
Savannah Florio…
They are 4 ½ & 2 ½ & have to endure:
11 different medications up to 6 times a day
(approx. 1080 pills a month, 495mL of liquid meds, 180 inhaled meds, 45 tsp of
salt)
1.5 hours of treatment every day (when they are healthy, longer & more frequent when they have a cold) – to help get rid of the mucus in the lungs.
Average life of a CF'er – 37 years
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| These are the 2 cuties!! |
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| Our team photo from the 2013 walk |
PLEASE PLEASE PLEASE donate! If you're interested in walking with us please let me know that too.
https://secure.e2rm.com/registrant/FundraisingPage.aspx?registrationID=2265157
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