Cystic Fibrosis is the most common fatal genetic disease affecting Canadian children & young adults. There is NO CURE. It primarily affects the lungs & digestive system. The common cold can hospitalize a person with CF, the flu can become life-threatening. Each day contains breathing treatments, sanitizing like crazy & doing whatever they can to avoid getting sick. In the lungs, a build-up of thick mucus causes increasingly severe respiratory problems. Large quantities of digestive enzymes (avg 20 pills a day) must be consumed with every meal & snack just to absorb nutrients. CF is progressive, so it gets worse every year. They get sicker & sicker with time. Virtually all CF related deaths are due to lung disease.
Meet Sophia & Savannah Florio…
They are 4 ½ & 2 ½ & have to endure:
11 different medications up to 6 times a day (approx. 1080 pills a month, 495mL of liquid meds, 180 inhaled meds, 45 tsp of salt)
1.5 hours of treatment every day (when they are healthy, longer & more frequent when they have a cold) – to help get rid of the mucus in the lungs.
Average life of a CF'er – 37 years
|These are the 2 cuties!!|
|Our team photo from the 2013 walk|
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