Friday, 21 March 2014

Great Strides 2014...

Come May we will be walking in the Great Strides Walk for the Cystic Fibrosis foundation. We walk in honor of my best friend's 2 little girls that battle this disease every day. 

Cystic Fibrosis is the most common fatal genetic disease affecting Canadian children & young adults. There is NO CURE. It primarily affects the lungs & digestive system. The common cold can hospitalize a person with CF, the flu can become life-threatening. Each day contains breathing treatments, sanitizing like crazy & doing whatever they can to avoid getting sick. In the lungs, a build-up of thick mucus causes increasingly severe respiratory problems. Large quantities of digestive enzymes (avg 20 pills a day) must be consumed with every meal & snack just to absorb nutrients. CF is progressive, so it gets worse every year. They get sicker & sicker with time. Virtually all CF related deaths are due to lung disease.

Meet Sophia & Savannah Florio…
They are 4 ½ & 2 ½ & have to endure:
11 different medications up to 6 times a day (approx. 1080 pills a month, 495mL of liquid meds, 180 inhaled meds, 45 tsp of salt)

1.5 hours of treatment every day (when they are healthy, longer & more frequent when they have a cold) – to help get rid of the mucus in the lungs.

Average life of a CF'er – 37 years

These are the 2 cuties!!
Our team photo from the 2013 walk

PLEASE PLEASE PLEASE donate! If you're interested in walking with us please let me know that too. 

https://secure.e2rm.com/registrant/FundraisingPage.aspx?registrationID=2265157

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