Showing posts with label CF. Show all posts
Showing posts with label CF. Show all posts

Tuesday, 10 June 2014

Live in nanny cont'd...

On Sunday, May 25 we went to the Harborfront Park in Hamilton for the Cystic Fibrosis walk. This is the 3rd year we have done the walk & every year, my sister, Angelina has come with us. Luckily it was a gorgeous day & the kids had fun. Mike had a visitation he had to go to after we got home. Ang & I took the kids out for a bike ride after lunch. Mike met up with us on roller blades & then we switched "vehicles". Ang & I got on bikes & put the kids in the strollers with Mike still on roller blades. Of course, they persuaded us to take a little detour to the park...


There was a fire engine on site & they let the kids come in & offered them coloring books. 



Had to beat up daddy with our new balloons


Group shot!

J didn't want to take a pic with the ladies...he's going to regret that later!

The ducky game. G & J got nerds & E ended up with a lollipop. It was so big they all ended up getting a lick. 













Monday, Ang had to leave. The boys were super sad & had a hard time dealing with the fact that auntie got out of the van & we had to leave her at the airport. They cried for at least 5 min on the way back to grandma's house. Luckily Ang had an easier time getting home than she did coming in. We've definitely missed having her here but we will see her very soon!

Thursday, 1 May 2014

STOMP CF 2014....



*WHO WANTS TO WIN MONEY??!!!!*

I am hosting a half & half raffle to raise money for my best friend's 2 daughters who have CF. The tickets are $2CAD/ticket or $5CAD for 3 tickets. Please PM me if you're interested. I have a paypal e-mail setup (if you don't have paypal & still interested we can figure something else out between us). Once I receive your payment I will send you a picture of your ticket(s) with your name on it. A winner will be picked on May 22nd. Whatever money raised, you will get half & the CF foundation will get half. PLEASE DONATE! PLEASE SHARE if you know of anyone that would be interested in winning some money!
 
Please e-mail stompcf.canada@gmail.com if you're interested.

Friday, 21 March 2014

Great Strides 2014...

Come May we will be walking in the Great Strides Walk for the Cystic Fibrosis foundation. We walk in honor of my best friend's 2 little girls that battle this disease every day. 

Cystic Fibrosis is the most common fatal genetic disease affecting Canadian children & young adults. There is NO CURE. It primarily affects the lungs & digestive system. The common cold can hospitalize a person with CF, the flu can become life-threatening. Each day contains breathing treatments, sanitizing like crazy & doing whatever they can to avoid getting sick. In the lungs, a build-up of thick mucus causes increasingly severe respiratory problems. Large quantities of digestive enzymes (avg 20 pills a day) must be consumed with every meal & snack just to absorb nutrients. CF is progressive, so it gets worse every year. They get sicker & sicker with time. Virtually all CF related deaths are due to lung disease.

Meet Sophia & Savannah Florio…
They are 4 ½ & 2 ½ & have to endure:
11 different medications up to 6 times a day (approx. 1080 pills a month, 495mL of liquid meds, 180 inhaled meds, 45 tsp of salt)

1.5 hours of treatment every day (when they are healthy, longer & more frequent when they have a cold) – to help get rid of the mucus in the lungs.

Average life of a CF'er – 37 years

These are the 2 cuties!!
Our team photo from the 2013 walk

PLEASE PLEASE PLEASE donate! If you're interested in walking with us please let me know that too. 

https://secure.e2rm.com/registrant/FundraisingPage.aspx?registrationID=2265157